A severely epileptic five-year-old lady dangers an “pointless demise” in accordance with her mom after border guards seized her consignment of medical cannabis oils at Stansted airport.
Indie-Rose Clarry, who has Dravet syndrome, a type of epilepsy, suffered extreme seizures and panic assaults earlier than utilizing the remedy over the previous 14 months, mentioned her mom, Tannine Montgomery.
Nevertheless, Montgomery was stopped by Border Pressure officers on Friday after getting back from the Netherlands, although she had a non-public prescription for the medication written by her UK physician.
“Seizing this drugs is condemning my beautiful daughter to changing into comatose, wracked by seizures and to be at excessive danger of an pointless demise,” mentioned Montgomery. “For the love of God, this drugs is authorized within the UK and I’ve a full lawful UK prescription for it.”
Parliament’s well being choose committee instructed the Dwelling Workplace this month to cease confiscating cannabis from the mother and father of sick kids. Regardless of the federal government asserting final yr that docs can prescribe medical cannabis, which accommodates the psychoactive ingredient THC, campaigners mentioned simply two NHS prescriptions have up to now been granted.
Montgomery, from Suffolk, mentioned that though she had a non-public UK prescription it was far cheaper to journey to the Netherlands to replenish on the oils. She yesterday urged well being secretary Matt Hancock to “type this disaster out”.
Though it’s unlawful to import such medicines and not using a licence, Mongtomery, 30, mentioned UK Border Pressure officers have beforehand allowed her into the nation with the drug. “To acquire a particular import licence would value us £4,500 per 30 days versus the £1,500 we pay for the drug for the time being,” she mentioned.
Montgomery added that Hancock wanted to intervene to halt the struggling of households. “Daily he doesn’t act on it’s a day of interminable struggling for moms like me.
“For households like us it’s an excessive amount of to bear the frustration of realizing that there’s one thing that may remodel the lives of our youngsters however we’re blocked from getting it,” she mentioned. Former dwelling secretary Sajid Javid introduced in 2018 that docs would be capable to prescribe medicinal cannabis merchandise, together with for extreme epilepsy.
Nevertheless, mother and father have discovered they can’t simply entry the medicines with out paying 1000’s of kilos for an import licence.
As well as, many docs is not going to prescribe them, citing a scarcity of official steering on the problem.
Peter Carroll, from the marketing campaign group Finish Our Ache, added: “That is really surprising. The regulation was modified final November in order that sufferers who may gain advantage from medical cannabis might be prescribed it right here.